1-30-2011: Sunday
Posted Jan 30, 2011 6:12pm
Hi everyone, my mom has been enjoying recovering from the
comfort of her home. My dad and Gizmo, and of course all of us and
i'm sure you as well, are glad she is home.
She is feeling pretty good- she's very sore still all over her body with aches, but we think that's the chemo coming out of her. I need your help to encourage her in SUBTLE ways the need for deep breathing, stretching and some level of exercise. She really needs it. She did manage to do some Yoga with me for about 5 minutes, but I think she needs others to motivate her and maybe she will listen to you :) If anyone has any dvd's or breathing cd's she can borrow :) that would be great too- the power of breath for your soul is so important and it helps to cleanse the bottom at a completely different level. I will be sending her some from amazon, but thought if anyone has them and live nearby they can share them.
Tia Maria Luisa- por favor, manda le por e-mail the breathing segments you and tio have on your Itunes.... I think she would listen to you.
If any of you have any ideas on how to motivate my mom OR possible if you have exercises she can do while sitting, just as a starting point, that would be great. Its hard for her to sit on the floor or do any big bending right now... but little by little my hope is that she can regain her strength and flexibility where she will want to do activities to make her feel better ;)
This past week she had another bone marrow biopsy, this time around it was really painful for my mother. The results have not come in yet from that- I will let you know when we find out.
The first round of chemo really has caused issues with her hearing, she has to go back to Ann Arbor for additional tests and ear scans to see what might be the issue with her ears.
If the biopsy results come back with no traces of Leukemia, the doctors still highly recommend she proceed with the bone marrow transplant. Her sister Patricia is a match! So my tia patty is waiting to get the word on when she has to travel to the USA. The ironic things of it all is that of all my mom's sisters, my tia has a phobia of needles, she hates them! she fears them. So this will be challenging for her, and my mom as a whole. pray for them to give them strength to jump this hurdle. It will be a tough mountain when the time comes. We should know more about the possibility of the bone marrow transplant next week.
My dad is scared (we are all scared) about the decision of the bone marrow transplant, because as we learn more about the process we are understanding the high risks to my mother. With this procedure there is a risk of the body rejecting the marrow. If this happens many horrible things can occur, a big concern is the shut down of major organs. Every decision ahead of us will be a tough one, all with risks. This is due to the FLT-3 mutation gene (rare leukemia gene) that my mother has been diagnosed with. This means that even though the first round of chemo killed all the leukemia cells, the chance of them returning is high. That is why if she gets clean tests results from this weeks biopsy, more than likely the doctor will recommend the transplant. This is the only way that the doctor's have indicated, will be my mom's chance at beat this type of cancer into remission.
So our next decisions will be hard, critical, and risky- but my mom is so tough- she said to the doctor when he told her, her options " Ive gone this far, I'm going all the way if that means I have to get a transplant, I'm doing it " , " I have to, and I will beat this". I'm so proud of her- She amazes me every day ....
I want to thank everyone who has sent cards, I think she is up to 1 million :) all from you. So sweet. and thank you for the calls and the visits and all the food. we are all very grateful for you.
love you all,
Ginny
She is feeling pretty good- she's very sore still all over her body with aches, but we think that's the chemo coming out of her. I need your help to encourage her in SUBTLE ways the need for deep breathing, stretching and some level of exercise. She really needs it. She did manage to do some Yoga with me for about 5 minutes, but I think she needs others to motivate her and maybe she will listen to you :) If anyone has any dvd's or breathing cd's she can borrow :) that would be great too- the power of breath for your soul is so important and it helps to cleanse the bottom at a completely different level. I will be sending her some from amazon, but thought if anyone has them and live nearby they can share them.
Tia Maria Luisa- por favor, manda le por e-mail the breathing segments you and tio have on your Itunes.... I think she would listen to you.
If any of you have any ideas on how to motivate my mom OR possible if you have exercises she can do while sitting, just as a starting point, that would be great. Its hard for her to sit on the floor or do any big bending right now... but little by little my hope is that she can regain her strength and flexibility where she will want to do activities to make her feel better ;)
This past week she had another bone marrow biopsy, this time around it was really painful for my mother. The results have not come in yet from that- I will let you know when we find out.
The first round of chemo really has caused issues with her hearing, she has to go back to Ann Arbor for additional tests and ear scans to see what might be the issue with her ears.
If the biopsy results come back with no traces of Leukemia, the doctors still highly recommend she proceed with the bone marrow transplant. Her sister Patricia is a match! So my tia patty is waiting to get the word on when she has to travel to the USA. The ironic things of it all is that of all my mom's sisters, my tia has a phobia of needles, she hates them! she fears them. So this will be challenging for her, and my mom as a whole. pray for them to give them strength to jump this hurdle. It will be a tough mountain when the time comes. We should know more about the possibility of the bone marrow transplant next week.
My dad is scared (we are all scared) about the decision of the bone marrow transplant, because as we learn more about the process we are understanding the high risks to my mother. With this procedure there is a risk of the body rejecting the marrow. If this happens many horrible things can occur, a big concern is the shut down of major organs. Every decision ahead of us will be a tough one, all with risks. This is due to the FLT-3 mutation gene (rare leukemia gene) that my mother has been diagnosed with. This means that even though the first round of chemo killed all the leukemia cells, the chance of them returning is high. That is why if she gets clean tests results from this weeks biopsy, more than likely the doctor will recommend the transplant. This is the only way that the doctor's have indicated, will be my mom's chance at beat this type of cancer into remission.
So our next decisions will be hard, critical, and risky- but my mom is so tough- she said to the doctor when he told her, her options " Ive gone this far, I'm going all the way if that means I have to get a transplant, I'm doing it " , " I have to, and I will beat this". I'm so proud of her- She amazes me every day ....
I want to thank everyone who has sent cards, I think she is up to 1 million :) all from you. So sweet. and thank you for the calls and the visits and all the food. we are all very grateful for you.
love you all,
Ginny
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